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Are you allowing your medical records to be hoovered up and shared outside the NHS?, If you don't opt out now, they will be (England only)
What are you doing about care.data?
What are you doing about care.data?
I'm happy with this use of my medical records, and I'm staying opted in [ 7 ] ** [10.77%]
I'm unhappy with this, and I'm opting out [ 29 ] ** [44.62%]
I'm going to spread the word so that people know what's going to happen if they don't do anything [ 11 ] ** [16.92%]
Never heard of it! [ 12 ] ** [18.46%]
I'm delighted to say that I don't live in England, so this doesn't apply to me! (Yet...) [ 6 ] ** [9.23%]
Total Votes: 56
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Fredd
post Tue, 28 Jan 2014 - 17:18
Post #1


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This is an entirely off-topic thread, except in that it involves government behaving like scumbags (again).

In the next few months the full medical records of every NHS patient in England will start being hoovered up directly from GPs' computer systems by an organisation called the Health and Social Care Information Centre. They "share" this information (including selling it), sometimes anonymised, sometimes not, not only within the NHS but also with outside organisations such as researchers and pharmaceutical companies. For your convenience the government has changed the law so that the Data Protection Act doesn't allow GPs any say in this and you will automatically be opted in unless you object.
  • The NHS is sending out an extraordinarily thin "fact" sheet titled "Better information means better care" - not to you individually, but in amongst the Royal Mail junk mail leaflets, which you may just have thrown away. It doesn't include any opt-out form.
  • For an alternative, far more comprehensive, and sceptical, view of this, a Hampshire GP has set up a simple website. Unlike the NHS information, it includes an opt-out form.

Whether you are happy with this and think it's a great idea, or think it stinks to high heaven, I've met so few people who are aware of it that I think it's worth doing everything possible to let people know what's happening and what they can do about it. Once the data's uploaded you have no control over it, so you need to decide now.


--------------------
Regards,
Fredd

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+Quote Post

Posts in this topic
- Fredd   Are you allowing your medical records to be hoovered up and shared outside the NHS?   Tue, 28 Jan 2014 - 17:18
- - sgtdixie   Thanks Fredd   Tue, 28 Jan 2014 - 17:49
- - Wongsky   I vaguely recall reading about this a while back. ...   Tue, 28 Jan 2014 - 17:50
|- - Fredd   QUOTE (Wongsky @ Tue, 28 Jan 2014 - 17...   Tue, 28 Jan 2014 - 20:08
- - Gan   I'd been aware of it for quite a while before ...   Tue, 28 Jan 2014 - 18:26
- - bama   Good post Fredd. the more people that know about t...   Tue, 28 Jan 2014 - 19:35
- - tapas600   Timely alert, Fredd, well done. I just had to rus...   Tue, 28 Jan 2014 - 20:50
- - axeman   Cheers Fredd, We are opting out   Tue, 28 Jan 2014 - 20:56
- - Dwain   Thanks Fredd, I and all of my family are opting ou...   Tue, 28 Jan 2014 - 21:48
- - glasgow_bhoy   I'm not affected, but if I was I'd be inte...   Tue, 28 Jan 2014 - 22:39
- - Dwain   Just dropped mine off at the doctors, they were th...   Wed, 29 Jan 2014 - 15:00
- - minotaur   Every time you go to hospital lots of staff ask yo...   Thu, 30 Jan 2014 - 15:19
- - enfield freddy   http://www.gponline.com/News/article/12291...t-dat...   Thu, 30 Jan 2014 - 15:41
|- - Fredd   QUOTE (enfield freddy @ Thu, 30 Jan 2014 ...   Thu, 30 Jan 2014 - 16:12
- - delusional driver   Is this the same as the opt out where there were f...   Thu, 30 Jan 2014 - 17:23
- - AscotGuy   This has been going on for years - http://www.hsci...   Fri, 31 Jan 2014 - 11:23
- - delusional driver   Ah right - anonymous is one thing but someone bein...   Fri, 31 Jan 2014 - 16:17
- - Dwain   Its been on the BBC today, starting with 'Toda...   Tue, 4 Feb 2014 - 15:40
- - Unzippy   Related: http://rt.com/news/uk-medical-records-ba...   Fri, 7 Feb 2014 - 15:32
- - Unzippy   Spreading? http://www.telegraph.co.uk/health/heal...   Wed, 12 Feb 2014 - 22:38
- - Fredd   I think the Royal College of GPs is kind of missin...   Thu, 13 Feb 2014 - 14:32
- - Unzippy   Front page of the Telegraph   Mon, 17 Feb 2014 - 13:08
- - Fredd   The backlash against this has now prompted what so...   Tue, 18 Feb 2014 - 18:44
|- - minotaur   QUOTE (Fredd @ Tue, 18 Feb 2014 - 18...   Tue, 18 Feb 2014 - 19:32
- - bama   QUOTE The BBC was even pushing the official line e...   Tue, 18 Feb 2014 - 19:40
- - Gan   Just watched an interview on BBC Breakfast ...   Wed, 19 Feb 2014 - 08:40
- - Fredd   Nice soft interview with Tim Kelsey, the NHS Natio...   Wed, 19 Feb 2014 - 11:38
- - minotaur   Our policies are never wrong or misguided - we jus...   Wed, 19 Feb 2014 - 11:42
- - Gan   I can remember hearing that "need to communic...   Wed, 19 Feb 2014 - 11:48
|- - delusional driver   QUOTE (Gan @ Wed, 19 Feb 2014 - 11:4...   Thu, 20 Feb 2014 - 14:18
- - Fredd   If you want to know how much (or how little) our p...   Thu, 20 Feb 2014 - 14:47
- - bama   pile it high sell it cheap transaction numbers wi...   Thu, 20 Feb 2014 - 16:38
- - ManxRed   As Sandi Toksvig said on the News Quiz, if they wa...   Thu, 20 Feb 2014 - 16:46
- - Incensed1   I don't get what the fuss is about. Or, rather...   Fri, 21 Feb 2014 - 18:03
|- - Fredd   QUOTE (Incensed1 @ Fri, 21 Feb 2014 - 18...   Fri, 21 Feb 2014 - 18:11
- - Fredd   Remember those very recent assurances that concern...   Mon, 24 Feb 2014 - 12:31
- - Unzippy   HMRC - bandwagon - jump http://www.bbc.co.uk/news...   Sun, 20 Apr 2014 - 13:41
- - c2k   Care.data database now scrapped https://www.theg...   Wed, 6 Jul 2016 - 23:21
|- - Fredd   QUOTE (c2k @ Thu, 7 Jul 2016 - 00:21...   Thu, 7 Jul 2016 - 05:55
- - Rusty Horn   If this is still active, then I guess I should opt...   Tue, 29 Sep 2020 - 09:56
- - trubster   Seems the latest government sheet show has been mo...   Fri, 27 Aug 2021 - 23:56
- - notmeatloaf   Whoever ponied up the money last year to link hosp...   Sat, 28 Aug 2021 - 03:10
|- - Slapdash   QUOTE (notmeatloaf @ Sat, 28 Aug 2021 - ...   Sat, 28 Aug 2021 - 06:56
- - Rob232   The second link in the OP seems to refer to a diff...   Fri, 22 Jul 2022 - 20:32


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