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Are you allowing your medical records to be hoovered up and shared outside the NHS?, If you don't opt out now, they will be (England only)
What are you doing about care.data?
What are you doing about care.data?
I'm happy with this use of my medical records, and I'm staying opted in [ 7 ] ** [10.77%]
I'm unhappy with this, and I'm opting out [ 29 ] ** [44.62%]
I'm going to spread the word so that people know what's going to happen if they don't do anything [ 11 ] ** [16.92%]
Never heard of it! [ 12 ] ** [18.46%]
I'm delighted to say that I don't live in England, so this doesn't apply to me! (Yet...) [ 6 ] ** [9.23%]
Total Votes: 56
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Fredd
post Tue, 28 Jan 2014 - 17:18
Post #1


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This is an entirely off-topic thread, except in that it involves government behaving like scumbags (again).

In the next few months the full medical records of every NHS patient in England will start being hoovered up directly from GPs' computer systems by an organisation called the Health and Social Care Information Centre. They "share" this information (including selling it), sometimes anonymised, sometimes not, not only within the NHS but also with outside organisations such as researchers and pharmaceutical companies. For your convenience the government has changed the law so that the Data Protection Act doesn't allow GPs any say in this and you will automatically be opted in unless you object.
  • The NHS is sending out an extraordinarily thin "fact" sheet titled "Better information means better care" - not to you individually, but in amongst the Royal Mail junk mail leaflets, which you may just have thrown away. It doesn't include any opt-out form.
  • For an alternative, far more comprehensive, and sceptical, view of this, a Hampshire GP has set up a simple website. Unlike the NHS information, it includes an opt-out form.

Whether you are happy with this and think it's a great idea, or think it stinks to high heaven, I've met so few people who are aware of it that I think it's worth doing everything possible to let people know what's happening and what they can do about it. Once the data's uploaded you have no control over it, so you need to decide now.


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Regards,
Fredd

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post Tue, 28 Jan 2014 - 17:18
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trubster
post Fri, 27 Aug 2021 - 23:56
Post #41


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Seems the latest government sheet show has been mothballed with no further "deadlines/launch dates"

QUOTE
NHS Digital announced in mid-July that it was abandoning the September deadline, and pausing the scheme, with no new launch date.


https://www.theguardian.com/society/2021/au...illions-opt-out
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notmeatloaf
post Sat, 28 Aug 2021 - 03:10
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Whoever ponied up the money last year to link hospitals with GPs electronically in Health Information Exchanges isn't going to be best pleased.

TBH I'm not against data sharing across the NHS. It's ridiculous that if you are admitted to A&E with a cardiac arrest, the hospital cannot see your GP has recorded that you do not wish to be resuscitated. However, data security currently is so basic that any universal access would inevitably be abused.
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Slapdash
post Sat, 28 Aug 2021 - 06:56
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QUOTE (notmeatloaf @ Sat, 28 Aug 2021 - 04:10) *
Whoever ponied up the money last year to link hospitals with GPs electronically in Health Information Exchanges isn't going to be best pleased.

TBH I'm not against data sharing across the NHS. It's ridiculous that if you are admitted to A&E with a cardiac arrest, the hospital cannot see your GP has recorded that you do not wish to be resuscitated. However, data security currently is so basic that any universal access would inevitably be abused.


I have regular treatment as an inpatient for 3 days every few weeks in London.

As a result of the underlying condition I have an assortment of regular clinics to keep an eye on certain things. These are done at 2 other different hospitals.

The total lack of access to shared records is difficult for everybody and can also cause certain issues because things can be contra indicated.

My consultant ends up duplicating a number of the scans (which is massively inconvenient for various reasons). It seems to be the easiest way for her to get the information needed.

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Rob232
post Fri, 22 Jul 2022 - 20:32
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The second link in the OP seems to refer to a different kind of member than those that usually post here. Perhaps a Mod might want to delete it?


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QUOTE (cp8759 @ Mon, 27 Feb 2023 - 18:31) *
Never, ever go for a postal decision.

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