Are you allowing your medical records to be hoovered up and shared outside the NHS?, If you don't opt out now, they will be (England only) |
Are you allowing your medical records to be hoovered up and shared outside the NHS?, If you don't opt out now, they will be (England only) |
Tue, 28 Jan 2014 - 17:18
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#1
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Webmaster Group: Root Admin Posts: 8,205 Joined: 30 Mar 2003 From: Wokingham, UK Member No.: 2 |
This is an entirely off-topic thread, except in that it involves government behaving like scumbags (again).
In the next few months the full medical records of every NHS patient in England will start being hoovered up directly from GPs' computer systems by an organisation called the Health and Social Care Information Centre. They "share" this information (including selling it), sometimes anonymised, sometimes not, not only within the NHS but also with outside organisations such as researchers and pharmaceutical companies. For your convenience the government has changed the law so that the Data Protection Act doesn't allow GPs any say in this and you will automatically be opted in unless you object.
Whether you are happy with this and think it's a great idea, or think it stinks to high heaven, I've met so few people who are aware of it that I think it's worth doing everything possible to let people know what's happening and what they can do about it. Once the data's uploaded you have no control over it, so you need to decide now. -------------------- Regards,
Fredd __________________________________________________________________________
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Tue, 28 Jan 2014 - 17:18
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Tue, 28 Jan 2014 - 17:49
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#2
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Member Group: Members Posts: 9,529 Joined: 5 May 2011 From: UK Member No.: 46,399 |
Thanks Fredd
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Tue, 28 Jan 2014 - 17:50
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#3
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Member Group: Members Posts: 1,232 Joined: 10 Aug 2012 Member No.: 56,507 |
I vaguely recall reading about this a while back.
Truth be told, I wasn't that concerned - but I realise that could be very conditional. I suppose it rather depends on what safeguards are in place, and the extent to which the data could be passed / released, really. Think I'd be interested in other comments, though - so will let the matter percolate a little, and see if there's some persuasive argument to make me firmly one way or the other about it. |
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Tue, 28 Jan 2014 - 18:26
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#4
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Member Group: Members Posts: 22,678 Joined: 23 Mar 2009 Member No.: 27,239 |
I'd been aware of it for quite a while before the thin leaflet arrived yesterday
What did come as a surprise was learning that the pseudomised data only removed names and didn't strip out other unique identifiers such as NHS number I'm going to be opting out Might start exploring the options of regarding the NHS as a last resort if I can get treatment at walk-in centres or across the channel Getting a lot of grief from Mrs Gan because I've refused to see my GP since her report to an insurance company has stuffed me for getting cover again No wonder her surgery has one of the three lowest ratings in the Midlands |
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Tue, 28 Jan 2014 - 19:35
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#5
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Member Group: Members Posts: 28,931 Joined: 29 Nov 2005 Member No.: 4,323 |
Good post Fredd.
the more people that know about this the better. -------------------- Which facts in any situation or problem are “essential” and what makes them “essential”? If the “essential” facts are said to depend on the principles involved, then the whole business, all too obviously, goes right around in a circle. In the light of one principle or set of principles, one bunch of facts will be the “essential” ones; in the light of another principle or set of principles, a different bunch of facts will be “essential.” In order to settle on the right facts you first have to pick your principles, although the whole point of finding the facts was to indicate which principles apply.
Note that I am not legally qualified and any and all statements made are "Reserved". Liability for application lies with the reader. |
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Tue, 28 Jan 2014 - 20:08
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#6
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Webmaster Group: Root Admin Posts: 8,205 Joined: 30 Mar 2003 From: Wokingham, UK Member No.: 2 |
I suppose it rather depends on what safeguards are in place, and the extent to which the data could be passed / released, really. The safeguard is that an "independent" Confidential Advisory Group (CAG) advises the Secretary of State whether in their opinion there's a "defined medical purpose". If they say there is, then everything's hunky-dory and your personally identifiable information (if that's what was requested) can be released. Since the CAG is based at the NHS Health Research Authority one might think this is all a bit cosy and that they're rather likely to think the request is justified. This isn't a theoretical situation: HSCIC already holds data from secondary care sources (eg hospitals), and quite regularly agrees to the release of personally identifiable information, alongside clinical information. Incidentally, the site that link's to is a site for health professionals in General Practice; it's interesting what a hot topic this obviously is with them, considering how little information the public's been given. -------------------- Regards,
Fredd __________________________________________________________________________
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Tue, 28 Jan 2014 - 20:50
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#7
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Member Group: Members Posts: 1,007 Joined: 2 Dec 2012 Member No.: 58,663 |
Timely alert, Fredd, well done.
I just had to rush a few weeks back to my local GP surgery to make sure me and my Mrs are not opted in. The current crop of politicians who are in charge of this (as Ministers of HM Government) are total slime, set up this fire sale of private data. -------------------- Remember: No one can fine you or issue a penalty other than a court, a policeman or a local authority under legislative powers.
PoFA=Protection of Freedoms Act 2012, Schedule 4 Further guidance on PoFA - DfT Guidance on Section 56 and Schedule 4 of POFA 2012 Essential Reading: Approved Operator Scheme (AOS) Guide to the Legislation - to learn how the private parking charges process works look at this flowchartParking on Private Land Appeals or POPLA is run by London Councils - the British Parking Association Ltd. (BPA Ltd) pays London Councils for this service. In fact, POPLA is a kangaroo court that rubber stumps private parking companies claims - read this Telegraph article and this Blog. The related documents can be found here. To see for yourself why POPLA has no legal powers and is not really independent please download and read this document from London Councils’ Transport & Environment Committee. More evidence that POPLA is not independent - read how PPCs are subverting the due appeal process and seek a back door deal to influence POPLA decisions. |
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Tue, 28 Jan 2014 - 20:56
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#8
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Member Group: Members Posts: 2,332 Joined: 10 Mar 2007 From: Midlands Member No.: 11,071 |
Cheers Fredd, We are opting out
-------------------- NOTICE The content of this post and of any replies to it may assist in or relate to the formulation of strategy tactics etcetera in a legal action. This post and any replies to it should therefore be assumed to be legally privileged and therefore must not be disclosed, copied, quoted, discussed, used or referred to outside of the PePiPoo forum on which it was originally posted additionally it must not be disclosed, copied, quoted, discussed, used or referred to by any person or organisation other than a member of PePiPoo appropriately paid up and in full compliance with the PePiPoo terms of use for the forum on which it was originally posted. The PePiPoo terms of use can be found at http://forums.pepipoo.com/index.php?act=boardrules. For the avoidance of doubt, if you are reading this material in any form other than an on-line HTML resource directly and legitimately accessed via a URL commencing "http://forums.pepipoo.com" then it has been obtained by improper means and you are probably reading it in breach of legal privilege. If the material you are reading does not include this notice then it has been obtained improperly and you are probably reading it in breach of legal privilege. Your attention is drawn to the Written Standards for the Conduct of Professional Work issued by the Bar Standards Board particularly under heading 7, "Documents".
Note that I am not legally qualified and any and all statements made are "Reserved" and do not constitute legal advice. Liability for application lies with the reader. |
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Tue, 28 Jan 2014 - 21:48
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#9
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Member Group: Members Posts: 617 Joined: 15 Jun 2006 Member No.: 6,174 |
Thanks Fredd, I and all of my family are opting out, who knows what this information could be used for in the future, we all know only to well how politicians only tell you what they think you need to know. I am sure insurance companies will gain access sooner or later.
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Tue, 28 Jan 2014 - 22:39
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#10
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Member Group: Members Posts: 10,460 Joined: 8 Sep 2008 Member No.: 22,424 |
I'm not affected, but if I was I'd be interested to find out more about this. I'm all for my data being shared for research purposes to help solve medical mysteries.
However as Dwain says- insurance companies will no doubt eventaully get their greasy little hands on it. |
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Wed, 29 Jan 2014 - 15:00
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#11
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Member Group: Members Posts: 617 Joined: 15 Jun 2006 Member No.: 6,174 |
Just dropped mine off at the doctors, they were the first they had seen, no one else in the whole of Ramsbottom has cottoned on..........yet.
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Thu, 30 Jan 2014 - 15:19
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#12
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Member Group: Members Posts: 899 Joined: 22 Nov 2012 From: East Midlands Member No.: 58,478 |
Every time you go to hospital lots of staff ask you questions and take notes.
Since this happens every time you visit hospital it's clear that no-one ever reads the notes. Since my local hospital seems unable to get notes to the appropriate ward within several hours of a patient's death I think it might be good to have SOMEONE read the notes. [I don't really mean the last bit. Just ranting.] -------------------- Remove Residents' Parking Scheme: Nottinghamshire County Council 0 - Me (and others) 1
Parking Tickets: Nottinghamshire County Council 0 - Me 3 Parking Tickets: Civil Enforcement Ltd. 0 - Me 1 |
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Thu, 30 Jan 2014 - 15:41
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#13
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Member Group: Members Posts: 985 Joined: 11 Mar 2008 From: up north , but not scootland Member No.: 17,975 |
http://www.gponline.com/News/article/12291...t-data-sharing/
and yet your doctor may get fined / sanctioned or whatever if he informs you about opting out , |
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Thu, 30 Jan 2014 - 16:12
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#14
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Webmaster Group: Root Admin Posts: 8,205 Joined: 30 Mar 2003 From: Wokingham, UK Member No.: 2 |
and yet your doctor may get fined / sanctioned or whatever if he informs you about opting out , Strangely enough my MP, who is a GP and very vociferous on health issues, hasn't (as far as I can see) said anything about care.data or that report. Must be terrible having both a professional ethical commitment to doctor/patient confidentiality, and at the same being part of a political party that's steamrollering all over it. -------------------- Regards,
Fredd __________________________________________________________________________
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Thu, 30 Jan 2014 - 17:23
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#15
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Member Group: Members Posts: 866 Joined: 24 Feb 2012 Member No.: 53,338 |
Is this the same as the opt out where there were forms available at the quacks or posted out circa 18 months / 2 years ago or is this a fresh one with the government hoping that if we opted out previously we wouldn't realise there is another scam going on?
-------------------- Wanting to live in a 'free' country without big brother and legislation instead of common sense. Any suggestions?
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Fri, 31 Jan 2014 - 11:23
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#16
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Member Group: Members Posts: 432 Joined: 14 Apr 2010 Member No.: 36,876 |
This has been going on for years - http://www.hscic.gov.uk/hes. This was started in 1987.
I have worked on this project and outside organisation could request reports written based on the data. So when you see a report that says Cancer Deaths up/down etc then generally they come from that data. The data was anonymous but not to any great extent. |
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Fri, 31 Jan 2014 - 16:17
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#17
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Member Group: Members Posts: 866 Joined: 24 Feb 2012 Member No.: 53,338 |
Ah right - anonymous is one thing but someone being able to see my name plastered all over is a bit different. Form went to the quacks this morning.
found an e-petition - not sure that they have explained what the petition is for very well but suppose that can be amended https://submissions.epetitions.direct.gov.uk/petitions/59971 -------------------- Wanting to live in a 'free' country without big brother and legislation instead of common sense. Any suggestions?
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Tue, 4 Feb 2014 - 15:40
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#18
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Member Group: Members Posts: 617 Joined: 15 Jun 2006 Member No.: 6,174 |
Its been on the BBC today, starting with 'Today' I think the brown stuff is just about ready, just a few more reports and the fan will get it!
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Fri, 7 Feb 2014 - 15:32
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#19
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Member Group: Members Posts: 1,006 Joined: 29 Oct 2013 Member No.: 66,323 |
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Wed, 12 Feb 2014 - 22:38
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#20
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Member Group: Members Posts: 1,006 Joined: 29 Oct 2013 Member No.: 66,323 |
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